Kelebek hastal\u0131\u011f\u0131 (Epidermolysis Bullosa), “b\u00fcl” ismi verilen i\u00e7i su dolu cilt lezyonlar\u0131yla karakterize bir genetik cilt hastal\u0131\u011f\u0131d\u0131r. Bu hastal\u0131\u011fa halk aras\u0131nda “kelebek \u00e7ocuk hastal\u0131\u011f\u0131” denir.<\/p>\n

Epidermolysis, deri gev\u015fekli\u011fi; bullosa da su dolu kabarc\u0131k manas\u0131nda kullan\u0131lan iki kelimedir. Hastal\u0131k \u00fcst deri ve alt derinin birbirine yap\u0131\u015fmas\u0131n\u0131n genetik olarak bozulmas\u0131 neticesinde meydana gelir. Hastal\u0131k, \u00fcst deri ve alt derinin birbirine yap\u0131\u015fmas\u0131n\u0131n genetik olarak bozulmas\u0131 sonucunda olu\u015fur.<\/p>\n

Takriben 20 senedir epidermolysis bullosa olgular\u0131n\u0131n \u00e7o\u011funda insan v\u00fccudunda bu hastal\u0131\u011fa sebep olan 13 maj\u00f6r (b\u00fcy\u00fck) gen tespit edilmi\u015ftir. Ebeveynlerin her biri hastal\u0131kl\u0131 genin ta\u015f\u0131y\u0131c\u0131s\u0131 olabilir. Pek \u00e7ok \u00fclkede bu hastal\u0131\u011fa yakalanan \u00e7ocuklara “Kelebek \u00c7ocuklar” denmektedir. Cilt, bilhassa \u00e7ocuklarda bir kelebe\u011fin kanatlar\u0131 kadar k\u0131r\u0131lgan oldu\u011fu i\u00e7in bu hastal\u0131\u011fa bu isim verilmi\u015ftir.<\/p>\n

Epidermolysis bullosada, deri a\u015f\u0131r\u0131 derecede hassast\u0131r. En k\u00fc\u00e7\u00fck bir temas, s\u00fcrt\u00fcnme ve bas\u0131n\u00e7 uygulanmas\u0131 halinde deride kolayca su kabarc\u0131\u011f\u0131 toplan\u0131p cilt b\u00fct\u00fcnl\u00fc\u011f\u00fc bozulabilir. Epidermolysis bullosa hastal\u0131\u011f\u0131nda su dolu lezyonlar yaln\u0131zca d\u0131\u015f deride s\u0131n\u0131rl\u0131 kalmay\u0131p a\u011f\u0131z i\u00e7i, mide, yemek borusu, solunum yollar\u0131, ba\u011f\u0131rsaklar gibi i\u00e7 organlarda da g\u00f6r\u00fclebilir.<\/p>\n","protected":false},"excerpt":{"rendered":"

Kelebek…<\/p>\n","protected":false},"author":9,"featured_media":71713,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1578],"tags":[30453,30454,30452,30455,30456,30457],"_links":{"self":[{"href":"https:\/\/www.coolkadin.com\/wp-json\/wp\/v2\/posts\/71712"}],"collection":[{"href":"https:\/\/www.coolkadin.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.coolkadin.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.coolkadin.com\/wp-json\/wp\/v2\/users\/9"}],"replies":[{"embeddable":true,"href":"https:\/\/www.coolkadin.com\/wp-json\/wp\/v2\/comments?post=71712"}],"version-history":[{"count":0,"href":"https:\/\/www.coolkadin.com\/wp-json\/wp\/v2\/posts\/71712\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.coolkadin.com\/wp-json\/wp\/v2\/media\/71713"}],"wp:attachment":[{"href":"https:\/\/www.coolkadin.com\/wp-json\/wp\/v2\/media?parent=71712"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.coolkadin.com\/wp-json\/wp\/v2\/categories?post=71712"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.coolkadin.com\/wp-json\/wp\/v2\/tags?post=71712"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}